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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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for all your kind supports.
i have seen the rheummy, the bloods are back and things are dire. Basically it has invaded every system, organs etc.
I am going into hospital, monday- I am not to leave hospital until he says so. there are other things to consider beyond the drugs- it looks like full chemo and bone marrow transplant may be on the cards.
in a nut shell i am very sick and unless i get treatment in hospital I am likely to be a mortality figure.
i knew things were bad but this is a shock even to me.
Have had a good cry.
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Oh Jenni this is such devastating news. I've just posted on Chin Wag about my experiences but reading this is absolutely awful. I can't help thinking that something has gone very sadly wrong with the system here. I know you have had significant problems with various drug regimes etc. but battling on as they have almost in the dark it would seem at times has now left you in this dire position. There's too much of this let's just try this, that and the other regardless of possible outcomes. On a positive note you are going in on Monday and you will be in the right place for a full investigation and assessment. This is what is needed and should have been done a long while ago in my opinion. You will come through this smiling and hopefully so much better. Keep fighting Jenni ... Michael, Gemma and little Bernice all need their mum and of course Richard too. Please let us know which ward and hospital you will be in so we can all keep in touch with you. Try and get plenty of rest before going in on Monday to give yourself the best chance of a successful outcome. And don't you dare leave until you're on the road to recovery! It goes without saying that you will have the support of all the lovely peeps on here and you are in my thoughts continually. Take care Jenni and thank you for posting; it couldn't have been easy. Lyn xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Oh Jenni, lovely, this is awful news. Will ring in the morning.
All our love and prayers
Jeanxxxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Oh Jenni, I'm so sorry.
This should never have been allowed to happen.
Sending love and hugs and lots of positive vibes for you.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 872
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Thinking of you, Jenni and praying for the best treatment and support for you on Monday and onwards,
Much love and huggles ~ from Liz xxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 157 Location: TYNE AND WEAR
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Oh goodness Jenni, such sad news for you, what a shock, Will always be thinking and praying for you, Much love Alison xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hello Jenni sending you my thoughts of postive treatment for you ,prayers and big hug so sorry for this to have occured wishing you very well for monday,much lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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What a shock to read Jenni. Your mind must be in turmoil. YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Oh Jenni what devastating news. It's a travesty that it's taken the NHS this long to realise the full impact of this disease on you. I can't think of anything to say that anyone else has already said - but keep on fighting Jenni. I hope you get the attention you need and deserve on Monday. Thinking of you always.
Julie xxx
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Rank: Newbie
Groups: Registered
Joined: 4/28/2010
Posts: 7
Location: Ipswich
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Jenni - I am so so sorry. What a terrible time. Thinking of you, all the luck in the world to you and your family.
Take Care
Sara xx
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Rank: Advanced Member
Groups: Registered
Joined: 3/24/2010
Posts: 102
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Jenni
sorry to hear such shocking news!
Sending very positive vibes
Beth
xxx
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Dear Jenni
I am so glad you are now being taken into hospital and they understand just how ill you are, although so very sorry to hear this news. I read an article only the other day about bone marrow transplant and it all sounded very positive to me. I m sure you will be really looked after by everyone there, thinking of you Jenni.
Love Julia xx
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Jenni, what devastating news to receive, I sincerely hope and pray you will be ok. Lots of love to you and your family be strong and keep fighting. Lorna xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Oh Jenni, what awful news for you and your family, that it has come to this. Will be hoping against hope that the docs can help to get you better.
You are a very feisty and strong person, and I'm sure that will help you through.
I'm thinking of you constantly and hoping for something postive to come out of this.
Love Lyn
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Jenni my prayers and thoughts are with you and your family , good luck for Monday , stay strong ,
Sophie x
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Jenni So sorry to hear your news and that you have to go into hospital for a long haul. Easy say but try and keep your spirits up, you will be in the right place for the Docs to look after you. Take care Rose x 
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 242
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Thinking of you Jenni and sending you lots of positive thoughts. You so deserve some luck now.
All the very best. Everyone is behind you.
Love
Rebecca
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 263
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Jennie my thoughts and prayers are with you. Love and best wishes from Kathleen Mc. xxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Jenni, have no more to add really, cant believe this is happening to you. You are a strong person, and will cope with this, please let us know which hospital and ward you are in. Please listen to what they say and stay to get the treatment. I am so sorry you have to deal with this. Sending hugs and prayers to you and your lovely family x x x BARBARA
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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Dear Jenni, I'm so sorry to hear your news. Glenys.x
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